To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalized, severely sick, or terminally ill. In When Your Child is Sick, psychosocial counselor Joanna Breyer distills decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes.
Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilize friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death.
When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.
To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalized, severely sick, or terminally ill. In When Your Child is Sick, psychosocial counselor Joanna Breyer distills decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes.
Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilize friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death.
When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.
An invaluable reference for parents of sick or hospitalized children by an experienced psychosocial counselor.
Joanna Breyer was educated at Oxford and Harvard where she got her psychology doctoral degree in 1983. As a psychologist she worked with children with cancer and their families for over 25 years at Dana Farber Cancer Institute (DFCI) and Children's Hospital Boston. She worked in the David B. Perini Quality of Life Clinic for Survivors of Childhood Cancer for over 10 years. She is married to Supreme Court Associate Justice Stephen Breyer.
NFAA Book Award Winner -- Gold Award
“Joanna Breyer balances profound compassion with pragmatism to
provide an extraordinarily valuable guide to the management and
care of sick children. By using real examples and clinical
vignettes, Breyer pierces through some the most difficult barriers
in medicine, and helps us navigate through complex and forbidding
landscapes. Written in the spirit of Jimmie Holland, the pioneering
psychiatrist who studied the minds of cancer patients, Breyer’s
book focuses its attention on children with cancer and other
illnesses. This book should be compulsory reading for anyone facing
these terrifying conundrums and life-altering decisions.”
- Siddhartha Mukherjee, author of The Emperor of
All Maladies: A Biography of Cancer, winner of the 2011
Pulitzer Prize in general nonfiction, and The Laws of
Medicine, assistant professor of medicine at Columbia
University
“When Your Child Is Sick is a wonder. Though I’ve known and admired
Dr. Breyer throughout her tenure at Dana-Farber/Boston Children’s,
I stand in awe at how comprehensive this book is in guiding
parents through maintaining confidence and alleviating fear during
what can be an extremely challenging experience. Breyer is a
former senior member of a team of experts that has vast experience
with helping families trapped in the crisis of profound childhood
illness. A great clinician, she is above all an inspired teacher
who provides a treasure trove of advice for those facing the
greatest fear parents have—that of losing a child.”
-David G. Nathan, President Emeritus, Dana-Farber Cancer Institute,
Physician-in-Chief Emeritus, Boston Children's Hospital, Robert A.
Stranahan Distinguished Professor of Pediatrics, Harvard Medical
School
“Based on her extensive experience helping children with cancer and
serious illnesses and their families, Dr. Breyer has written this
comprehensive, innovative, and useful book. She describes, in
detail, the trajectory of serious illness in children and the
stressors that they and their families face. Using examples
from her own practice as well as from others’ clinical and research
work, Dr. Breyer provides a wealth of practical and effective
strategies to help them cope during and after treatment and when
treatment fails. Not a “one-size-fits-all” approach, she emphasizes
the role of individual differences, experiences, styles,
personalities, and preferences. In addition, there is a
listing of various resources to help parents navigate treatment and
living with childhood cancer. When a child is diagnosed with
a serious medical condition, parents often tell us that there is no
roadmap or guidebook to tell them what to expect and how best to
help their child – this is that book.”
-Mary Jo Kupst, Ph.D., Emerita Professor of Pediatrics, Medical
College of Wisconsin
"Joanna Breyer's compassionate, informative, and clear-eyed guide
lights the way for parents of children with cancer. Drawing
upon her 20 years as a pediatric psychologist at the Dana-Farber
Cancer Institute, Ms. Breyer describes the many situations such a
parent might face and considers the various ways a parent might
respond to a child’s illness. In so doing, she provides comfort
during a confusing, shocking, and despairing time. Joanna
Breyer’s counsel for parents who have lost a child—that the death
of a child is nearly unbearable, but that they will survive and
emerge stronger—is exactly on point, as I know all too well.
This is a handbook for life events we don’t ever want to
consider. I am grateful that Joanna Breyer has considered
them so thoughtfully."
-Nancy Goodman, Executive Director, Kids v Cancer
“This is definitely the book to read if you have a sick
child. The author helps families navigate the complex course of
pediatric illness by describing evidence-based psychological
interventions that alleviate suffering in the patient and his
family. This book is also an excellent guide for pediatric medical
staff, who will learn working tools that improve the quality of
their work and the quality of their patients´ lives. I recommend it
without hesitation and wish I´d had it earlier in my professional
career.”
-Maria Die Trill, Ph.D., President, International Psycho-Oncology
Society
“An incredibly important contribution for families with a child who
has a serious illness, especially a malignancy. When Your Child Is
Sick offers a rare combination of evidence-based information and
practical suggestions for parents and children. Joanna’s experience
and wisdom helping families deal with the issues posed by serious
childhood illness is best viewed through the detailed case examples
provided. The list of resources and online support provided in the
appendix is incredibly exhaustive and useful. This book empowers
parents and children to become active engaged members of their care
team which will benefit everyone.”
—Dr. Michael Yogman, Chief, Division of Ambulatory Pediatrics, Mt.
Auburn Hospital, Harvard Medical School
"A book I wish I had read in medical school. Here is wisdom
about mortality and the human condition without pretense or
posturing. Here is a selfless portrait of a vocation."
—Alan A. Stone, MD, Psychiatric Times
"[Breyer] proves to be the expert friend and advocate everyone
needs: informative, steady, sympathetic, and—if treatment
fails—unflinching at the prospect of loss."
—Harvard Magazine
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